This is the very first bible verse Ella and Alyssa have completely memorized while we spent a week at Pine Cove in August. It was a monumental week for our family for several reasons. It was such a blessing to see Ella be able to run, jump, play, laugh and just do all the normal kid things. It was a blessing to see Ella and Alyssa learn about God and get so excited to go to their "Cove Kids" day. It was a blessing for Clif and I to grow together and meet some new friends. And it was a blessing to hear goodness and truth spoken through the camp speaker that week, Chris Legg. Him and his wife Ginger are true examples of following Christ through the wind and the rain. The wisdom they have and the peace they posses is amazing! Of course it wouldn't be Pine Cove without water sports, trail rides, crazy & fun counselors, games, theme nights and smores! It's camp not only for kids but adults too! Cannot wait to go back next year!!!
Well, I can't believe it's been 3 months since I've last posted an update. I am clearly not the best blogger so please accept my apologies for just getting to an update.
Ella had check up appointments yesterday with both her renal doctor and her rheumatologist. They are very pleased with her progress and everything is still headed in the right direction! Still in remission! Vasculitis has a 50% chance of coming back within 1-2 years of diagnosis so she will continue maintenance treatment for a while. HUGE PRAISE- the protein in her 24 hour urine collection has gone from over 1800 down to 420. The nephrologist was excited! However, her blood pressure is still high and she is still not really gaining weight. All of her blood test results are normal though! <Lots of praises on that!> Ella will continue going to the infusion center every other Friday- she goes this Friday. This is still for a high does of steroids (solumedrol) through iv. Another praise though is that they are lowering her daily dose of prednisone.
If you want to know more about her disease, below is a brochure I found with information.
https://docs.google.com/file/d/0B-xA6db-wfStak1tbGxoSFdXMEk/edit
She continues to be an energy ball of joy! The first day of school was Monday and Ella is able to join in the educational fun. She is just over the moon to be back at school! Alyssa started school back this week as well!
Excited to see what the Lord has in store for all of us this fall!
Pine Cove
